I attended a 'Cystic Fibrosis Education Day' seminar in Kansas City, Missouri. I was surprised, as there were a lot of people there. It was directed to the parents of kids with CF (Cystic Fibrosis) or the care providers. In the picture above I met the authors of a book called 'The Power of Two' A Twin Triumph over Cystic Fibrosis. Written by Isabel Stenzel Byrnes and Anabel Stenzel. They are Japanese/German twins, from California. If you get a chance you should check out their book or look at their website: www.stenzeltwins.com
There were many different topics covered were:
CF across the lifespan (from the Stenzel twins)
CF and Finances (for treatments and future care of patients, etc.)
Research updates (by- Jaylene Weigel -RN,CPN)
Transitioning to Adult Care (Dr. Quijano & Dr. Black)
Eating Behaviors and CF (by- Rebecca Johnson, PhD)
This lady had a lot of pretty good tips on how to work with picky eaters and kids who need to accomplish various medical procedures etc.
I was happy to hear that there has been lots of good progress on the research side of things.
The Seminar was from 8am- 2pm.
Bye and have a good day everyone.
