Starting Up Blogging again.....

This is a picture of Valorie and Lucy- March 2019-

Valorie Enjoying Jenga Tumbling Tower

Here is a picture of Valorie during her recent Hospital stay. She got really into the game of Tumbling Tower. I was playing with her and she got really excited about winning, she did end up winning!!! .

New additions to our family.

Olivia- has turned 12!!! Woah!

It is hard to imagine that my little baby (Olivia) is now 12 years old. She had her birthday this last Saturday (September 12). She is growing up so fast, and she has been a wonderful help in many things, from different computer/paper work related stuff, to helping with cooking (she is really good at making salads). She is also a wonderful swimmer and very athletic. She loves art work, and singing. She has been doing well in her guitar playing (she started learning 6 months ago).
Here are a few pictures of Olivia, but the most recent pictures will be posted soon.*









Now the birthdays all begin, as Olivia kicks it all off. She was Sept. 12, Georgia will be 5 on Oct. 6, Kiona will be 11 yrs old on Nov. 7, then Valorie will be 9 yrs old on Dec. 18....

Anyway, Olivia... We love you TONS!!! You are really a wonderful daughter.

Cystic Fibrosis Education day August 2009 in Kansas City.

I attended a 'Cystic Fibrosis Education Day' seminar in Kansas City, Missouri. I was surprised, as there were a lot of people there. It was directed to the parents of kids with CF (Cystic Fibrosis) or the care providers. In the picture above I met the authors of a book called 'The Power of Two' A Twin Triumph over Cystic Fibrosis. Written by Isabel Stenzel Byrnes and Anabel Stenzel. They are Japanese/German twins, from California. If you get a chance you should check out their book or look at their website: www.stenzeltwins.com

There were many different topics covered were:
CF across the lifespan (from the Stenzel twins)
CF and Finances (for treatments and future care of patients, etc.)
Research updates (by- Jaylene Weigel -RN,CPN)
Transitioning to Adult Care (Dr. Quijano & Dr. Black)
Eating Behaviors and CF (by- Rebecca Johnson, PhD)
This lady had a lot of pretty good tips on how to work with picky eaters and kids who need to accomplish various medical procedures etc.

I was happy to hear that there has been lots of good progress on the research side of things.

The Seminar was from 8am- 2pm.

Bye and have a good day everyone.

Our summer - so far- so many pictures!!!

Pictures can tell a story - in itself-. Here are several pictures of a trip that we made to Yosemite and Seqoria State parks in California. We have been home a few weeks now, so I thought to go ahead and posts these pictures. I know that there is going to be more to post really soon. Enjoy!!!